[Reader-list] Organ Stealing: Fact, Fantasy, Conspiracy, or Urban Legend?
Monica Narula
monica at sarai.net
Sat Sep 7 17:12:22 IST 2002
After my last posting on urban legend i was sent a link of a possible
"visualization". Enjoy!
http://elfwood.lysator.liu.se/zone/g/r/gregory4/martianlc.jpg.html
And further gleaning from the web brought out the following paper,
which is a fascinating look into another kind of urban legend.
best
Monica
Organ Stealing: Fact, Fantasy, Conspiracy, or Urban Legend?
Nancy Scheper-Hughes
Professors, Department of Anthropology University of California, Berkeley,
"What's true? What's false? Who knows how to evaluate anymore?"
Seu João Gallo, Brazilian shantytown resident, 1990
Descend with me for a few moments into that murky realm of
the surreal and the seemingly magical, into the maelstrom of grisly
stories, fantastic allegations, and hideous rumors of kidnap,
mutilation, dismemberment, blood and organ stealing -- and to taste
the terror and panic that these stories occasion in the
nervous-hungry residents of urban shantytowns, tent cities, squatter
camps, and other "informal settlements" in the third world.
My primary illustrations will come from the shantytowns of
Brazil, where I have conducted long-term, intermittent ethnographic
research since the mid 1960s. (Scheper-Hughes 1992,1995). But I also
draw on related instances from elsewhere in South and Central
America, and I will also refer to the current
situation in and around Cape Town, South Africa where I am currently
engaged in a study "everyday" violence, some of it political, some of
it criminal, and some of it medical.
The Rumor
A ghoulish rumor first surfaced in the shantytowns of Brazil
in the mid-1980s, and it has been circulating there ever since. The
whisperings tell of the abduction and mutilation of children and
youths who, it is said, are eyed greedily as fodder for an
international trade in organs for wealthy transplant patients in the
first world. Residents of the shantytown Alto do Cruzeiro in NE
Brazil, the primary site of my research, reported multiple sightings
of large blue and yellow combi-vans [of the type used as Gypsy taxis
by the poor the world over] , driven by Americans or Japanese agents,
who were said to be scouring poor neighborhoods in search of stray
youngsters. The children would be nabbed and shoved into the trunk of
the van. Their discarded and eviscerated bodies -- minus heart,
lungs, liver, kidneys, and eyes -- would turn up later by the side of
roads, in between
rows of sugarcane, or in hospital dumpsters.
'They are looking for 'donor organs'. You may think this is
just nonsense", said my friend and research assistant, "Little Irene"
in 1987. " But we have seen things with our own eyes in the hospitals
and the morgues, and we know better."
"Bah! These are stories of the poor and illiterate",
countered another of my friends, Casorte, the skeptical new manager
of the municipal cemetery of the plantation town I call Bom Jesus da
Mata. 'I have been working here for over a year and never have I seen
anything. Where are these bodies? [Yet, even as we spoke on the
following day, a municipal truck arrived at the gates of the cemetery
with the body of a "desconicido", the remains of an unknown,
unclaimed man found murdered in an abandoned field not far from town.
The eyes and genitals had been removed. "Death squads", whispered
Casorte, by way of explanation, and he made the gesture of a throat
being slit ].
The body snatching rumors were picked up by newspapers in
Recife and were reported on the radio. Most of news reports mocked
the credulity of simple people. But the media coverage, meant to
dispel the rumors, actually exacerbated them. "Yes, it is true, wept
Dona Aparecida, wringing her hands on the doorstep of her shack on
the garbage strewn street called the Vultures' Path. "I heard it on
the radio". Consequently, small children were
kept securely locked in at home while their parents were out working.
I found one terrified little girl tethered like a goat to a wobbly
table leg.
Globalization of the Rumor
Soon after I began writing and delivering papers that
interpreted the Brazilian organ stealing rumors in terms of the
everyday violence practiced against the bodies of the poor and the
marginal, I began to hear other
variants of the organ theft stories from anthropologists working in
Argentina, Colombia, Peru, Guatemala, Honduras, Mexico, India, and
Korea. The rumor -- as we now know -- has trans-national, indeed
global dimensions. Media reports of the seizure and sale of children
( and of fetuses) for organ transport surfaced in domestic and
international newspapers [ see Maite Pinero, Le Monde Diplomatique,
1992, for a listing of some of the most noteworthy news stories
between 1987-1992]. The rumors were investigated by various
international human rights organizations, and the practice was
condemned in a resolution approved by the European Parliament in
November l988.
Though most of the stories came from Central and South
America, there were reports of the organ theft rumor surfacing in
Poland and Russia where it was reported that poor children's organs
were being sold to rich Arabs for spare parts surgery. (Czubala
1991). Historian Luise White (1993) published stories of blood
sucking/blood stealing human vampires in East and Central Africa, and
South African anthropologist, Isak Niehaus (1993) has recorded blood
and organ stealing rumors in the Transvaal collected during fieldwork
in 1990-1993. The African variants often tell of blood sucking
"firemen" or of "medical" agents driving red combie-vans looking to
capture unsuspecting people to kill (or to drug) in order to drain
their blood ( or to remove organs) for magical ("muti") or medical
purposes (to sell to local hospitals).
In Italy (of all places!) Paolo Toselli (1991) wrote a series
of news features concerning rumors of poor children kidnapped for
transplant surgery that surfaced in August 1990 and quickly achieved
wide circulation. As many as 231 children were reported kidnapped in
Italy during 1990. In the Italian instance, the stories focused on a
"black ambulance" as the kidnap vehicle. Other Italian rumors warned
of a mobile operating surgery touring the countryside north of Rome.
And, there were rumors of a blackmarket trade in poor Brazilian
children said to be illegally imported to Italy as a source of "spare
parts" for organ transplants. Here we have, full circle, the rumor
that began in Brazil , the "donor" nation, finding its counterpart
some two years later turning up in the "receiving" nation. [Like the
children's game 'Telephone']
But, I was stymied just a few days ago, when my husband and I
went out to dinner with our son, Nate, and his Argentinean buddy,
Mattias, both university students. I apologized for being preoccupied
and explained I was a bit worried about a presentation I had to make
in in Italy on organ stealing rumors. Mattias immediately perked up
and asked asked what I was going to say. "Do you have any
information?", I asked slyly. "Well", Mattias began, " this Mexican
lady who works in the kitchen of 'Noah's Bagels' told me about a
friend of hers who had gotten drugged and abducted from Spengler's [
a seafood restaurant ]. The guy was just sitting at the bar and
minding his own business when a business man , dressed up to kill in
a Giogio Armani suit, sat down next to him and bought him a few
drinks. Well, the guy finally passed out cold and the next day the
police discovered him still unconscious in a dumpster. He was O.K.
but he had a very fine little incision on his stomach, like it was
done by professionals, you know."
One could even link the Latin American "baby parts" story
with rumors in the U.S. of UFO alien abduction for sexual abuse and
organ/reproductive stealing ["aliens have no genitals!" ], as
reported by Luise White (1994) and by perceived abduction victims in
therapy in my own community, Berkeley, California (Richard Offshey,
personal communication). I encountered a version of this story in
Spanish-speaking northern New Mexico a few years ago. Local farmers
and ranchers there had spread a rumor of ritualized animal
mutilations that was attributed to extraterrestrials. A livestock
inspector I interviewed in Taos County verified instances of
ritualized slaughter of livestock with mutilations and did not
discount the possibility of Alien terrorists.
Impact of the Rumors:
The rumors have had their effects. An article I published
(originally in the LA Times (1990) but picked up by international
news agencies, and republished in New Internationalist in which I
linked the "organ theft" rumor and panic in Brazil to the shadowy
practices of international adoption there helped to shut down the
American evangelical Christian "orphanage" I had investigated in a
suburb of Recife and to reduce significantly the number of
international adoptions from that city and from rural Pernambuco.
Elsewhere, accounts of the rumor --even in media stories attempting
to disprove or discount it -- have backfired and generated an anti-
international adoption climate in Central America, but especially in
Guatemala, where foreign tourists, suspected of child theft for organ
trafficking have been attacked. The Leventhall report for USIA notes
the adverse effects of the organ stealing rumor on voluntary organ
donation, citing a precipitous decline in donated cornea in Columbia
following national broadcasts of child organ trafficking there.
Verifying the Rumor
Verifying actual cases of children exported for organ
transplants has lead to a predictable dead end. Allegations of "baby
farms" and "fattening houses" in Guatemala, Honduras, Mexico, and
Brazil, where newborns were said to be housed awaiting transport to
the United States for use as organ donors , were investigated and
found to be based on false accusations. The International Children's
Right Monitor, published a report raising the obvious questions:
Where would the operations take place? How could the murder of the
child donors be concealed? Wouldn't the cost and difficulty of an
illegal and criminal trade far surpass the difficulty of normal
procedures? Patients
awaiting a transplant in US and every organ made available to them is
strictly monitored by computer through the United Network for Organ
Sharing. And organs must be matched to recipients to avoid rejection.
Why, then, is it
that the 'baby parts story just won't die? (San Francisco Examiner,
1990), despite the appointment of a full-time disinformation
specialist , Todd Leventhall, for the U.S. Information Agency in
Washington who has led a long
campaign to kill it?
What does it mean when a lot of people around the world begin
to tell variants of the same bizarre and unlikely story? In other
words, how does one interpret the social imaginary of poor and third
world peoples? According to one interptretive strain the rumors
indicate a kind of global mass hysteria reflecting characteristic fin
de siecle anxieties and post modern malaise, a misplaced new age
spirituality focusing on the body and the sanctity of organs in the
face of everyday threats to personal security in the forms of urban
violence, anarchy, theft and loss, fragmentation. ( The world's
cities, after all have never been so dangerous, so violent.)
Less dramatically, the world rumors have been interpreted by
some oral historians and folklorists ( see Dundes 1991;
Campion-Vincent 1990, White 1993,1994) as constituting a genre, an
oral literary form, the "urban legend". The stories are circulated
and repeated because they are "good to think" and "good to tell",
they entertain by fright , write Luise White, just like good old
fashioned ghost stories 1 .
Todd Leventhall, disinformation officer for the US
Information Agency, has adopted this language in his report "The
Child Organ Trafficking Rumor: a Modern Urban Legend" (December
1994). Citing the writings of eminent folklorists ( like
Campion-Vincent 1990) who interpret the organ theft stories as the
literary inventions of semi-literate people who do not possess the
skills to sort out the credible and realistic from the incredible and
the fantastic, Leventhall unequivocally states that the rumors are
"groundless", "pernicious" , and "harmful". His position is that the
rumors must be exposed, refuted, and killed.
Here I will frame my remarks as a response to Mr.
Leventhall's conclusions that "no government, international body,
NGO, or investigative journalist has ever produced any credible
evidence to substantiate the rumor ....[which constitutes] a false
story that is commonly believed because it encapsulates... widespread
anxieties about modern life" ( 1994:i). Among these are "fear of and
resentment at wealthy foreigners...fear of wrongful mutilation and
death, subconsciously stimulated by the dramatic advances during the
past ten to fifteen years in the field of organ transplantaton"
(1994:2).
The USIA Leventhal report equates third world organ theft
stories with US rumors about pets exploding in dangerous microwave
ovens, and with the popularity of the American novel and film, Coma,
that portrayed unsuspecting people rendered comatose state so that
their organs could be removed for transplant in others. Organ theft
rumors in South America and the Hollywood film are equated under the
rubric of unsophisticated peoples' anxieties about modern
technologies that have proceeded too far and too fast.
Leventhall's report relies on peoples' stories and narratives
(just like the rumors he is trying to dispel), although among his
sources are police, public officials and military officers, rather
than the common people who often feel threatened by these. Lacking is
any familiarity with the everyday, lived experiences of the very poor
who circulate and believe the baby parts and organ stealing stories.
Here, the ethnographer, working in small locations over time and
skilled in the tasks of gathering and interpreting "local knowledge"
by means of multi-layered "thick descriptions" of everyday life can
perhaps throw new light on the fantastic rumors.
In Northeast Brazil where my research focused on the causes
of infant and childhood death -- later of the deaths of the
"disappeared" adolescents and young men of the shantytown of Alto do
Cruzeiro. I began with the "official " statistics, but finding them
wholly inadequate, [ Child deaths, for example, are routinely
under-reported by more than 50% in rural NE Brazil (see
Scheper-Hughes 1992,1995, in press; Nations and Amaral 1991)], I soon
left the civil registry office to walk the length and breath of the
poor barrios, hillside slums, and outlaying hamlets in order to
observe and document the experiences of the sick and dying, and to
hand count, as it were, the the dead, and the disappeared. My "rule
of method" was simple -- follow the bodies! Into the public clinics,
into hospitals , even into surgery amphitheaters. It meant attending
infant and child wakes, following "angel" processions and burials,
trailing "street children" on their rounds of the city and tracking
them down in the local jails that illegal detained them. It meant
tracking bodies in the local hospital morgue, and accompanying
relatives of the "disappeared" to the the Medical-Legal Institute in
Recife. It meant visits to the municipal graveyard to examine old,
new and reused gravesites, and the remains of the "unknown" or the
"unclaimed " that were removed prematurely from competitive
gravesites and tossed into the deposito de osos (the collective
paupers' deep well ) in the cemetery.
Collecting peoples' narratives is important, but one needs to
listen to popular voices as well as the "official story". In Brazil
this meant collecting the stories of the "folk demographers" of the
rural community: the
priests and nuns who attend deaths, the pharmacists, hospital
orderlies, the local carpenters who fashion pauper coffins of
plywood, cardboard, and crepe paper, the local seamstresses who sew
the shrouds, the "praying women" who prepare the bodies of the poor
and despised for burial, and the venders in the local market who sell
all the ritual paraphernalia used at wakes. What these people did not
know the combi- taxi drivers who carry the sick and
dying to and from clinics and hospitals might know. What they didn't
know the local grave-digger was sure to know. The all too often
"rejected knowledge" of these "specialists" can provide the missing
social context within which
strange events occur and even stranger rumors circulate to account for them.
Based on this kind of anthropological "thick description" --
both in Brazil and in South Africa -- I have drawn rather difficult
conclusions about the organ stealing rumors, suggesting that the
stories are repeated and circulated because there is some truth to
them (see Scheper-Hughes 1992, chapter 6).
Most anthropologists ( as opposed to folklorists) who have
encountered these rumors in one form or another will suggest that the
stories are , like the Scriptures, at the very least metaphorically
true, operating by means of symbolic substitutions. Blood sucking
rumors in Africa and organ theft and fat stealing rumors in South
America are cogent metaphors expressing the often grotesque nature of
colonialist and neo-colonialist economic, social relations and labor
practices. (See Comarff 1985; Taussig 191987,1990; Nash 1977; Niehaus
1993 ). The root metaphor concerns the radical commodification of the
body and of body parts in work and in new medical practices.
In its strongest and plainest version, the body parts rumors
may be taken as factually true. The business of organ transplants is
conducted in a transnational space. Elements of both legal and
illegal trade in blood and solid organs exist in some parts of the
world. Between 1983-1988, 131 patients from three renal units in the
United Arab Emirates and Oman traveled to Bombay, India where they
purchased, through local brokers, kidneys from living donors. The
donors were from urban shantytowns outside Bombay who were
compensated between $2,000 and $3,000 for a kidney. This ghoulish
trade was widely publicized in an Indian news weekly, but treated as
well in a Lancet article analyzing the high mortality among the Arab
recipients of purchased Indian kidneys (Salahudeen et al. 1990).
Where there is a legal market in the sale of blood or organs, one can
be almost certain of an illegal blackmarket replete with human rights
abuses.
In my research on AIDS in Brazil (Scheper-Hughes 1994), for example,
I found that 1 of every 5 cases of reported AIDS in Rio de Janeiro
was linked to contaminated blood. Although it is unconstitutional to
traffic in blood in Brazil, the new laws have not been enforced by
public health authorities. In Rio, Mafia style "numbers" game
bookmakers (bicheiros ) traffic openly in blood and blood products
just as they do in illegal drugs.
Meanwhile, in Cape Town, South Africa today cornea, heart
valve, liver, and skin graft "donations" are harvested and
distributed to the appropriate surgical and medical units for use in
transplantation without soliciting family members' consent. The
'donor' bodies, most of them township Blacks and 'Coloureds' who were
the unfortuante victims of violence and other traumas, are handled by
state pathologists attached to public mortuaries still controlled by
the police. (see NIM 1996: 37-38). There is strong disagreement among
pathologists today about the current mortuary-to-surgery practices
which are not in strict conformity with South African laws. There is
no "presumed" consent for cadaveric organ procurement. Instead,
doctors and hospitals are "presumed" to operate with explicit consent
of organ donors or their families, a presumption that is not
completely warrented.
Fear of potential medical exploitation of the dead is strong
enough in South Africa at present that the second section of the now
hopefully final draft Bill of Rights , dealing with the security of
the person, includes
wording meant to protect the human rights of potential organ donors.
The ANC favored wording of the section on the right to bodily
integrity to specify " the right to make decisions about reproduction
and their bodies free from
coercion, descrimination and violence. Speaking for the ANC, Willie
Hofmeyer explained the inclusion of the words 'and their bodies' with
reference to the case of organ transplantation in South Africa.
It should come as no surprise, then, that in the
impoverished Black townships outside of Cape Town, a stone's throw
from the city's famous Groote Schurr teaching hospital ( where
Christian Barnard pioneered heart
transplants), people express hostile and negative attitudes toward
organ donation. 2 Politically astute township youths referred to the
directionality of the exchanges: organs were being "harvested" from
poor and black bodies -- representing the majority of the population
of South Africa and accounting for a grossly disproportionate number
of violent and accidental deaths -- for transplantation into wealthy,
white bodies. Sophisticated, high tech medicine is the perogative,
still, of South Afican whites. Negative attitudes toward organ
removal also derive from older and "traditional" practices of "muti"
murder in which organs are removed for magical practices. A case,
verified by doctors at Groote Schurr Hospital, occurred in Nyanga, a
black suburb of Cape Town this past year (Cameron 1995).
Here I will argue that the organ stealing stories are told,
remembered, and circulated because they are true at that
indeterminate level between metaphor and fact. The poor people of
urban shantytowns world wide are "on to something" ; the stories
express an intuitive sense that something is gravely amiss.
Timing of the Rumors: Political Disappearances / State of Emergency
It is important to note the geo-political mapping and the
timing of the organ stealing rumors. While rumors of blood libel and
body snatching appear and disappear periodically, the current spate
of organ and child stealing rumors arose and spread in the late
1980s. In Brazil, Argentina, Guatemala El Salvador, and South Africa
the organ stealing rumors have arisen within a specific political
context and following a recent history of military
regimes, police states, civil wars, and " dirty wars" in which
abductions, "disappearances", mutilations, and deaths were
commonplace.
During the Argentine "Dirty War" of the late 1970s and early
1980s, children were stolen, students were captured, interrogated,
tortured and killed. Their bodies were abused and mutilated, and
physicians often
collaborated as interrogator- torturers ( as they did in El Salvador
, Argentina, and in South Africa) with the military state.
Anthropologist Marcelo Suarez Orozco (1987) described in lurid detail
the abuse of children
during the "Dirty War". Babies and small children were kidnapped and
given to military families; older children were abducted by security
officers, brutalized in detention, and then returned "transformed" to
relatives. Some
of these were used as "bait" to entrap other "subversives". Other
children were tortured in front of their parents and some died in
captivity. An official truth commissions, established in the mid
1980s (CONADEP 1984 ),
initiated the task of documenting after the fact the kinds of
atrocities that had terrorized large segments of the population
there. Nonetheless, Dr. Felix Cantarovitch, reporting from the
Ministry of Health in Buenos Aires in 1990, contributed an article to
Transplantation Proceedings (1990) in which he states:
"In Argentina between 1984 and 1987 a persistent rumor
circulated about child kidnapping. The rumor was extremely
troublesome because of its persistence sustained by the exaggerated
press that has always been a powerful tool to attract attention of
people about the matter. In November 1987 the Secretary of Health
gathered the most important authorities of justice, police, medical
associations and also members of Parliament with the purpose of
determining the truth. As a result it was stated that all the rumors
and comments made by the press were spurious."
Similarly, Mayan Indian villages in Guatemala sustained
military attacks that were nothing less than genocidal over the past
decade. The counterinsurgency war, which reached its height between
1978 and 1984, left
over 100,000 people dead, another one million internally displaced,
and caused thousands to flee across the Mexican border. Over 440
rural Indian villages in the highlands were destroyed. (see Falla
1982, 1992; Green 1995). Women were widowed and children were
displaced, lost, and orphaned in the tens of thousands. These
displaced children became the focus of international (especially
North American) adoption, contributing to villagers mounting sense of
panic, terror, and disaster. The consequent hysterical attacks of
American tourists, especially those seeking to adopt Indian babies,
has to be understood within this recent history. That Leventhal cites
interviews with Guatemala's military officials in refuting the
over-detemined child and organ stealing rumors there, is a bit like
asking the proverbial fox to guard the hen house.
Similarly, in Brazil many vestiges of the military state
remain. In the shantytowns this presence is still felt in the
late-at-night knock on the door, the appearance of masked men in
police uniform, and in the scuffle
abduction of one's husband or teenage son. Several young men of the
Alto do Cruzeiro , each black, young and in trouble with the law for
petty crimes, were seized from their homes just after Christians in
1987 by masked men in uniform. Two of the bodies, slashed, mutilated,
and duped between rows of sugarcane, turned up a few weeks later. The
police arrived with graphic photos: "How do you expect me to
recognize meu homen (my man) in these
pictures? Dona Elena screamed. Finally, the men came one night for
the teenage son of Black Irene, the boy that everyone on the Alto
knew affectionately as "Nego De". The existence of local paramilitary
death squads is suspected, but on this topic shantytown people are
silent, speaking, when at all, in a complicated form of sign
language. No one else wants to be marked. Meanwhile, violent attacks
and the murder of unwanted street children
in Brazilian cities continues unabated to this day (see Dimenstein
1992; Scheper-Hughes and Hoffman 1994).
One could "read" the organ stealing and baby parts rumor and
panic as a response to the nervous, unstable democracies just now
emerging in parts of South and Central America. In Argentina, Brazil,
Guatemala, the rumors surfaced or soon after the democratization
process was initiated and in the wake of the reports by " truth
commission" such as Nunca Mas in Argentina and Brazil Nunca Mas. The
rumors appeared, then, during a time when people finally became aware
of the magnitude of the atrocities practiced by the state and its
henchmen. Insofar as the poor of urban shantytowns are rarely called
upon to speak before official Truth Commissions, body theft rumors
may be seen as a surrogate form of political witnessing. The rumors
participate in the spirit of the various official Truth Commissions
by testifying to human suffering on the margins of the official story.
The rumors also signify a sense of alarm, warning others in
the community that their bodies, their lives, and those of their
children are or have been in danger. The rumor expresses, obliquely
and covertly, the abnormality of the "normal" and the chronic "state
of emergency" in which poor people live (Taussig 19992, citing
Benjamin). The rumors express the subjectivity of subalterns living
in a "negative zone" of existence where lives and bodies are
experienced as a constant crisis of presence (hunger, sickness,
injury) on the one hand, and as a crisis of absence and disappearance
on the other.
Misplaced Bodies: Clinics and Hospitals
There are even more mundane sources of the organ theft
rumors as well. In Brazil the rumors allude to the way that poor
peoples' bodies are usually dis-regarded in medical encounters. In
public clinics and hospitals of the rural Northeast indifferent
doctors in the employ of the state or the municipio are willing to
over-medicate the poor, to tranquilize hungry bodies, and to order
unnecessary amputations and surgical removals for treatable
conditions. I think of the municipal dental clinic in Bom Jesus where
poor peoples' teeth were extracted for minor toothaches. Dr.
"Tiradentes" agreed, saying with a shrug of his shoulders:
" Yes, this clinic is scandal,truly, and people worse off
coming here than treating themselves. This is no way to run a clinic.
... What do you see here -- just a chair!
All I do is pull teeth. People come in with a healthy set of teeth,
but with a pain they can't bear. All they need is a filling. But they
can't afford a private dentist in town. So, against my conscience I
pull the tooth. If I sent them all home, I'd soon be out of a job.
My job is not only to extract teeth from the poor, but to extract
their votes for the mayor as well."
And at the municipal clinic Dr. Joao took a cursory look at
Seu Antonio, a cane cutter who had suffered a series of strokes that
had left his eye damaged and his vision impaired, and said: " That
eye of yours isn't worth
anything; let's have it removed." The frequent accident victims among
the sugarcane cutters and sugar mill workers on the plantations
return home from hospital with grotesque scars and badly set bones
that leave them permanently disfigured or disabled. Meanwhile, the
the middle classes and the wealthy of rural Brazil indulge themselves
in the very latest and most sophisticated forms of body sculpting and
plastic surgery. "So many of the rich are having plastic surgery and
organ transplants, "offered an older woman of the shantytown of O
Cruzeiro, that we really don't know whose body we are talking to
anymore".
In all, the organ stealing rumor has its basis in poor
peoples' perceptions, grounded in a social and bio- medical reality ,
that their bodies and those of their children might be worth more
dead than alive to the rich and the powerful. They can all too easily
imagine that their bodies , and the bodies of their young children,
may be eyed longingly by those with money. As they envision it ,
organ exchange proceeds from the bodies of the young, the poor
and the beautiful to the bodies of the old, the rich, and the ugly ,
and from the poor in the South to the rich in the North: Americans ,
Germans, Italians, Japanese and Israelis in particular.
Obviously, there are many existential and ethical dilemmas
concerning modern biomedical technology that are being imaginatively
addressed by shantytown residents in the pre-literate form of "wild"
rumors. For these reasons shantytown residents fear hospitalization
and avoid dying in public hospitals where they imagine that autopsies
are done to harvest usable organs from charity patients as a way of
canceling their medical debts. "Little people like ourselves", I was
often told, "can have anything done to them". Stories like the
following, told by an elderly washerwoman from Recife confirms some
of these suspicions:
"When I was working in Recife," she began, "I became the
lover of a man who had a huge, ugly ulcer on his leg. I felt sorry
for him and so I would go to his house and wash his clothes for him,
and he would visit my house from time to time. We were going along
like this as lovers for several years when all of a sudden and
without warning, he died. The city sent for his body. I decided to
follow him to make sure that his body wouldn't be lost. He didn't
have a single document, so I was going to serve as his witness and as
his identification papers. But by the time I got to the public morgue
they had already sent his body to the medical school for the students
to practice on.
So I followed him there and what I saw happening at the school I
could not allow. They had his body hung up and they were already
cutting off little pieces of him. I demanded the body back, and after
a lot of arguing they let me take it home with me. It's true, he was
only a beggar, a 'tirador de esmolas,' who sometimes did magic tricks
on the bridge in Recife to amuse people. But I was the one who washed
his clothes and took care of his wound, and so you could say that I
was the owner of his body."
When Biu's little girl Mercea, who had been sick for a very
long time, finally died in late February of 1988 just as they arrived
at the emergency room of the local hospital, Biu wisked the child's
body away despite the
protest of the clinic staff. She and her sister buried Mercea
hurriedly that same day. I accompanied Biu to the registry office
where she recorded the child as having died at home that morning. "We
were afraid of the state", Biu
said, "I didn't want an autopsy or Mercea's body tampered with. She
is my child and I will be the guardian of her little body."
But Mercea, like most of the more than 300 children who die
in Bom Jesus each year, was buried in an unmarked grave although in
her own little coffin, purchased on credit. Within less than six
months her grave was cleared to make room for another "little angel"
and her remains were tossed in the deep well that is called the bone
depository, the "depósito de ossos". And so, Mercea's older sister,
Xoxa, (who was away working on a plantation at the time of her baby
sister's death) could not, on her return home, locate the little
grave. This made it difficult for Xoxa to offer her sister the pretty
white stockings that Mercea told Xoxa in a dream that she wanted.
"Your vision was a true one", Biu told her eldest daughter. "In our
rush to bury Mercea we had to put her into the ground barefoot."
[ slide of Xoxa with Stockings]
Unequal Exchange
It was just this perceived injustice of unfair and unequal
exchange of organs and body parts that kept Dona Carminha in search
of medical assistance for her only living son, Tomas, who was blinded
at the age of seven following the medical maltreatment of a serious
eye infection. Secondary scar tissue had grown over the cornea of
both eyes and the boy , now l3, was living in a world of impenetrable
darkness. Carminha was certain her son's condition could be reversed
by a cornea transplant. The only obstacle , as she saw it, was that
the "eye banks" were reserved -- like everything else in the world --
for those with money. She had taken the boy to Recife, and then by
bus to Rio where she pursued one impossible lead after another.,
going from hospital to hospital. Through all she persisted in her
belief that somewhere she would find " a sainted doctor" , a doctor
of conscience who would be willing to help. "Don't they give new eyes
to the rich"? And, wasn't her own son "equal before the eyes of
God?"she asked.
Finally, the child and organ stealing rumor reflects
unscrupulous practices of international adoption. In the shantytowns
of Brazil I encountered several cases of coerced adoption and (in
1990 alone) two cases of child stealing by wealthy "patrons" 3 . Each
year nearly 1,500 children leave Brazil, legally, to live with
adoptive parents in Europe, the United States, and Israel. But if one
adds the clandestine traffic in babies that relies on false documents
and bureaucratic corruption in Brazil and abroad, exploiting the
ignorance and the powerlessness of poor women , the number of
children leaving Brazil has been estimated at 3,000 a year, or
roughly 50 babies a week 4 .
The lively market in "spare babies" for international
adoption is often confused with the lively market in "spare parts"
for international transplant surgery. As poor people in shantytowns
see it, the ring of organ exchange proceeds from the bodies of the
young, the poor, and the beautiful to the bodies of the old, the
rich, and the ugly, and from poor nations in the South to rich
nations in the North. In the midst of the black market for organs and
babies, poor people can hardly be blamed for thinking that their
babies are wanted as much dead and for their organs as or their lives.
My investigations in 1989 (previously reported) led me to a
small beach-front hotel in Recife, Pernambuco where I encountered
several couples from Europe and the United States awaiting the final
steps in adopting a Brazilian child. Most were working through
adoption agencies in their native countries that had put them in
touch with "Casa Alegre", a children's home in a secluded hillside
suburb run by an elderly Protest missionary from the American
Midwest. The couples had scheduled their arrivals to coincide with
the appointment of a sympathetic children's judge who supported
international adoptions.
Adoption cost the couples about $3,000 excluding air fares
and living expenses in Brazil, considerably less than the $l0,000 it
cost in the U.S. $1,000 went directly to the Children's Home, and
another thousand to the
local "adoption lawyer", and the remainder paid for various legal
"processing fees" and for a court translator. The couples, working
through intermediaries, knew little about the birth parents, but they
all believed that the birth mothers had voluntarily surrendered their
children.
At Casa Alegre in Recife I found a dozen babies lying in
cribs. Above each head was a name and , in some cases, the name of an
adoptive parent and their phone number. Some of the babies were
awaiting the adoption proceedings, others had just arrived. Several
babies looked ill and malnourished. The director explained that she
did the best she could to match the babies according to the adoptive
parents' specifications. Most wanted pretty,
healthy babies, light-skinned and with white features. Girls were preferred.
When I asked, directly , about the Brazilian "traffic in
babies", the director admitted that aspects of the adoption process
were murky. Sometimes, she had to fight with mothers to release their
children. Some birth mothers resisted signing the adoption papers
even when they know it would be best for their child. As I left Casa
Alegre I thought of the tortured ambivalence of Dona Maria of the
Alto do Cruzeiro and of the loss and humiliation suffered by her
husband. "When I am very angry", she once said, "I think to myself,
'Why doesn't that rich American woman who stole my little blood
(galega ) come back and rescue the rest of us as well.'"
Conclusions:
Organ transplantation takes place within a specific
historical, social, and political context. It depends, as
Cantarovitch (1990) suggests, on a social contract and a social
trust. The procedures cannot exit without the protest and defiance
which the organ stealing rumors register, unless the grounds for
social trust are explicit. This requires national and international
laws protecting the rights of both organ donors and organ recipients.
At a very rudimentary level, the practice of organ
transplantation requires a reasonably fair and equitable health care
system. The Ministry of Health in Gauteng, South Africa was correct ,
I think, in proposing a temporary moratorium earlier this year on
organ transplants, until the majority of South African blacks in the
province could be assured access to adequate primary health care.
Despite protests from the organ donor foundations, some organs (
corneas in particular, according to my sources) are taken without
consent. It seems like stating the obvious to suggest that organ
donation requires a transparent process of informed consent .
The social ethics of transplantation requires a reasonably
democratic state in which basic human rights are protected and
guaranteed. Organ transplantation occurring, even in elite medical
centers by the most
conscientious of physicians, within the milieux of a police or
military state where political "disappearances ( Brazil, South Africa
), "dirty wars" ( Argentina) , ethnic cleansing (Bosnia) or genocide
(Ruanda, Guatemala) are
practiced or where routine police torture and injury and deaths in
detention are common ( the 'old' South Africa) , can only represent
an abomination, another form of violence. Under such compromised
circumstance the most
vulnerable people will fight back with the only resources they have
-- gossip and rumors which convey, albeit obliquely, the reality of
the "situation of emergency" that exists for them.
Following from the above, other requirements are a legal
system concerned with the protection of women's reproductive rights,
so that poor women are free from coerced sterilization and coerced
adoption, both of which exist in parts of the world. Similarly, where
vestiges of forced labor exist especially in "debt peonage" systems
which unfairly bind workers to their "bosses", unfair exchanges --
including trade in children -- for survival fuels the panic
underlying rumors of organ and child stealing.
Finally, the US government needs to accept far more
responsibility for reinforcing political and economic circumstances
that engender the bodily, ontological insecurity registered in the
organ stealing rumors. The USIA document is tone deaf to the very
real suffering expressed in the rumors, a suffering based on economic
imbalances and political collusions in which the US has played no
insignificant part.
Acknowledgements
Parts of this paper was presented and discussed at the
Conference on "Securing Bodily Integrity for the Socially
Disadvantaged: Strategies for Controlling the Traffic in Organs for
Transplantation", Bellagio, Italy,
September 24 -28, 1995. That Tsuyoshi Awaya, Bernard Cohen, Abdallah
Daar, Sergei Dzemeshkevich, Chun Jean Lee, Robin Monro, Hernan Reyes,
Sheila Rothman, Eric Rose, Kenneth Schoen, Zaki Shapira, and Heiner
Smit and myself were able to spend four intensive days together
debating the philosophical, medical, and human rights dimensions,
meanings and consequences of the global trade in human organs
testifies either to the incredible skills of David Rothman as
moderator and 'founder of the feast ' or to the calming effects of
Lake Como. Probably both.
Notes
1.This is how White (1993, 1995) explains Central and East African
blood sucking and organ stealing stories, especially favored by poor
women who are sex workers. The women tell stories of urban brothels
where unsuspecting men are lured and then drugged as they sit on
chairs covering a trap door which drops the unconscious client to a
basement where he is "operated on", that is, his blood is drained,
skin is removed, and organs are taken. Poor women, so often abused by
their male clients, took great delight in telling stories of male
"johns" rendered unconscious, passive, mute, and physically gutted.
2. I cite my own field research in Chris Hani squatter camp as well
as professors of medicine at the University of Cape Town ( Lerer,
Benataur, personal communication).
Nonetheless, a survey of "public attitudes to organ donation in South
Africa", published in SAMJ in Feb. 1993 remarkably reported generally
positive and supportive attitudes across ethnic lines, with the
exception of
communities closest to Groote Schurr Hospital where most
transplantations in the country have taken place (see Pike, Odell,
and Kahn 1993).
3. When Maria Lourdes, the mother of five sickly and malnourished
children living in a miserable hovel on the Alto do Cruzeiro was
asked by her wealthy boss ) if she could "borrow" Maria's
four-year-old, Maria readily agreed. The woman, for whom Maria washed
clothes, said she wanted the little "blond" (galega) just for her
amusement. Maria sent her daughter off just as she was: untidy,
barefoot, and without a change of clothing. The patroa promised
to return the child the following morning. Two nights passed and when
still her daughter was not returned, Maria became worried but she did
not want to anger her boss by appearing mistrustful. When Maria's
husband returned home from his work on a distant plantation and he
discovered his favorite daughter was missing, he shoved Maria up
against the wall of their hut. "Stupid woman!", he yelled when Maria
told him what had happened. The husband went off in frantic search.
At the house of the patroa he learned that the child had already been
given to a missionary who directed a "children's home" that
specialized in overseas adoption. "Your daughter is in good hands,"
insisted the home's local sponsor and benefactor. "Leave her where
she is and soon she will be on her way to America to become the
daughter of a rich family. Don't be selfish; give her a chance." Had
Maria and Manoel lodged a complaint with the police? I asked. "Do you
think the police would take a complaint from us?" Maria said. She was
angry at having been tricked but she came to accept what had
happened. Surely her daughter was better off now.
4. Israel: About l50 Brazilian children live with their legal
adoptive parents in Israel. Between 1985-1990 about 2,000 children
have entered Israel from Brazil in a questionable manner. Italy: Most
adoptive babies who go to
Italy are from the state of Bahia which has a heavy concentration of
Afro-Brazilians. Some of these adoptions have been investigated by
the Italian courts. Germany: The clandestine adoptions of Brazilian
babies to Germany can be traced to the Northeast Brazilian city of
Fortaleza.
United States: About 200 babies leave Brazil each year legally
through the help of private adoption agencies, many of them
affiliated with fundamentalist and evangelical Christian Churches.
References Cited or Disussed at Conference
Barnett, Andrew and Roger Blair and david Kaserman. 1992. Impriving
Organ Donation: Compensation Versus Markets. Inquiry 29: 372-378.
Black, Peter. 1978. Brain Death. NEJMed 299:338-93.
Brasil - Nunca Mais
Campion-Vincent, Veronique. 1990. The Baby-Parts Story: a New Latin
American Legend. Western Folkore 49 (1) (January ): 9-26.
Cantarovitch, F., l. Casto, and A.M. Cerrajeira. 1991 Aspects of
Argentine Transplant Program: a 12 Year Review. TP 23(5): 2521-2522.
Cantarovitch, Felix. 1990. Values Sacrificed and values Gained by the
Commerce of Organs: the Argentine Experience. TP 22(3): 925-927.
1992. " Legal Aspects of Transplanatation in Argentina"
Transplantation Proceedings 24(5): 2123-2124
Chengappa, Raj. 1990. The Organs Bazaar. In dia Today, July: 30-37.
Comarff , Jean 1985
CONADEP 1984 . [Report on Torture and the Dirty War]
Czubala, . 199
Daar, A.S. 1992. Rewarded Gifting. Transplanatation Proceedings 24: 2207-11.
199_. Living-Organ Donation: Time for a Donor Charter. Current
Opinions. 376-380.
1992. Nonrealed Donors and Commecialism. TP 24(5): 2087-2090.
Dundes, Alan, editor. 1991. The Blood Libel Legend. Madison,
Wisconsin: The University of Wisconsin Press.
Falla, Ricardo 1982. The Massacre at the Rural Estate of San
Francisco July 1992. Cultural Survival Quarterly 7(1).
1992 Massacres de la Selva. Ixcan, Guatemala 1975-1982. Guatemala:
Universidadad de San Carlos de Guatemala, 1992.
Fox, Renee and Judith Swazey. Spare Parts: Organ Replacement in
American Society. Oxford University Press.
Green, Linda. 1995. "The Routinizatio of Fear in Guatemala.
Occasional papers, 2(July 1995) Department of History, University of
Saskatchewan.
Guttmann, R.D. 1993. Regulated Commerialism in Transplantation. TP
25(1): 58-59.
International Children's Right Monitor, 198_
Human Rights Watch/Asia 1995 An Executioner's Testimony.
Supplementary Submission by HRW/A to the US Senate Committee on
Foreign Relations' May 4,1995 Hearing on China's Use of Executed
Prisoners' Organs
Kervorkian, Jack. 1992. A Controlled Auction Market is a Practical
Solution to the Shortage of Transplantable Organs. Med Law 11: 47-55.
Kjellstrand, C. 1990. The Distribution of Renal Transplants -- Are
Physiians Just? TP 22(3) (June): 964-965.
Leventhal, Todd . 1995. " The Illegal Transportation and Sale of Huma
Organs: Reality or Myth?". Paper presented to conference of the
International Association of Chiefs of Police. (xerox copy ).
Washington, D.C.: USIA.
Luhrmann, Tanya. 1992 (December). Untitled. AAA paper. San Franciso, Calif.
Nash , June. 1977
Niehaus, Isak . 1993. Coins for Blood and Blood for Coins: Toward a
Genealogy of Sacrifice in the Transvaal Lowveld. Paper read at the
meeting of the Society for South African Anthropology, Johannesberg.
NIM. 1996. Breaking With the Past: Reports of Alleged Human Rights
Violatios by South African Police. Cape Town: Network of Independent
Monitors.
Ohnuki-Tierney, Emiko. 1994. Brain Death and Organ Transplantation:
Cultural Bases of Medical Technology. Current Anthropology 35(3),
June. Pp. 233-254.
Palmer, Robin. 1984. Blood Donation in the Border Region: Black
Donors, Exdonors, and Nondonors. Institute of Social and Economic
Research. Rhodes University, Grahamstown. (August 1984).
Pike,R.E., J.A. Odell, D. Kahan. 1993. "Public Attitudes to Organ
donation in South Africa." SAMJ 83 (February): 91-94.
Pinero, Maite. 1992. Le Monde Diplomatique, 1992,
Quah, S.R. 1992. "Social and Ethical Aspects of Organ Donation". TP
24(5) October: 2097-98.
Raymond, Janice. 1989. Children for Organ Export? Reproductive and
Genetic Engineering 2(3): 237-245.
Rothman, David. 1992. Rationing Life, New York Review of Books 39(5)32:37.
Salahudeen et al. 1990. High Mortality among recipients of bought
living-related donor kidneys. The Lancet 336 (8717): 725-727.
Scheper-Hughes, Nancy and Daniel Hoffman. 1994. Kids Out of Place. NACLA
Scheper-Hughes, Nancy. 1990. Theft of Life. Society 2796): 57-62.
__________ 1992 Death without Weeping. Berkeley: University of California Press
__________ 1994 "AIDS and the Social Body" Social Science& Medicine
Seels, R.A. 1993. Consnt for Organ Donation: What are the Ethical
Principles? TP 25(1) February: 39-41.
Segre, Marco. 1992. Partial Liver Transplanatation from Living
Donors. Cambridge Quarterly of Healthcare Ethics 4: 305-325.
Smith, Robert. 1989 "the Trafficking in Central American Children",
Report of Guatemala10(3): 4-5.
Suarez-Orozco, Marcelo. 1987. Te Treatment of Children in the Dirty
War. In Scheper-Hughes,ed. Child Survival, pp. 227-246. Dordrecht: D.
Reidel.
Taussig, Michael 1987, 1990 "Nervous System"
Toscelli, Paolo. 1991. "Babbini: Carne da trapianto! la leggenda
esplode." Tutte Storie 1.2 (1991): 1-6.
USIA The Child Organ Trafficking Rumor: a Modern Urban Legend. Report
submitted to the United Nations Special Rapporteur on the Sale of
Children, Child Prostitution, and Pornography, December 1994.
White , Luise 1993. Cars Out of Place: Vampires, Technology, and
Labor in East and Central Africa . Representations 43 (Summer):27-50.
1994 Alien Nation: the Hidden Obsession of UFO Literature. Transition
63: 24- 33
n.d. Between Gluckman and Foucault: Historicizing Rumor and Gossip.
(unpublished paper)
World Medical Association 1985 WMA Statement on Live Organ Trade,
Brussels, Belgium, October.
Newspaper Articles
Cameron, Jackie. 1995. "Muti Doctor Arrested for Killing Boy". Cape
Times August 10,1995, p.2.
Chaudhary, Vivek. 1994. "Organ Trade Investigators Seize Hospital
Records". The Guardian, June 22.
Hebert, Hugh. Victims of the Transplant Trade. 1994 The Guardian
June 24, p. 38.
[Review of BBC's The Great Organ Bazaar" ]
Max, Arthur. 1995. "Stolen Kidneys Supplying Idia's Transplant
Industry" SF Chronicle, April 6.
Wallace, Charles. 1992. For Sale: the Poor's Body Parts. LA TIMES,
Aug. 27, A, 1:1.
Wentworth, Richard. 1993. Italians Find Signs of Wide Corruption in
Health Ministry"
[Judges probe allegations of human organs secretly removed fom
corpses and sold on black market ; HIV-infected blood due to black
market in blood], Christian Science Monitor November 30.
--
Monica Narula
Sarai:The New Media Initiative
29 Rajpur Road, Delhi 110 054
www.sarai.net
More information about the reader-list
mailing list